This post might seem like I’m just bitching…
The issue I have been noticing with being disabled is that people expect you to have some sort of grand insight into what social issues there are with being disabled. I have noticed myself being hindered by the idea where not everything I write or vlog about is in relation to me being in a wheelchair, so this post is to people who are in that camp.
The irony of feeling I should be discussing disability issues is the deafness and tragic comedy of the situation.
Okay, that sounds incredibly selfish, so please allow me to put it another way.
I spent 24 years of my life not disabled. I got the meningitis vaccine in high school, and got meningitis anyway. It induced encephalitis, and now I am in a wheelchair and suffer from epilepsy. So, when I start to complain about how “hard life is”, I feel disingenuous. I feel like I am just complaining because my life has hit a road block, and I am worried that my “plight” will take attention away from more important issues. I also feel as though I am far from qualified enough to talk on the social and economic issues at hand.
When someone says that they will not follow or promote my work because it’s not focused enough on disability issues, this is why I find my respect for that person start to drop.
I have lived a great portion of my life under the assumption that I should not let my shortfalls hold me back, and now that I am in a place where my shortfalls have a greater impact, I still hold that advise to a higher regard. Possibly, a higher regard than I should.
My point simply being: if I have a “hot-take” on some social or political issue, I will probably write about it. If I don’t, it either doesn’t impact me or I don’t want to give wrong information. If I am NOT focused enough on things you feel I should be, don’t read my blog. That simple.