Condescending

Many things can be taken the wrong way. Maybe you are just telling someone they look nice today, or truthfully saying that things went well. We live in a world where sarcasm and jest has ruined parts of language. This does not even mention context and inflection.

There is one term, however, that will always be condescending regardless of the context it is in.

“Baby steps!”

A term rarely meant in any capacity then that of recognition of accomplishment and a desire to commiserate with an individual, those two worlds illustrate a literal degradation of someones accomplishments.

I got a bit non-plused there. Let me start again.

The term baby steps is almost NEVER okay.In fact, I would only say that I agree with it when the phrase is being used literally or when you have extensive knowledge about what the person is dealing with.

I was talking to a member of the staff here at the apartment the other day.I mentioned how proud I was that I took four steps unassisted the other day. Her reply was “baby steps, right?” I frothed at the mouth as I wheeled from the office. How dare she trivialize what I accomplished?

Maybe I am taking it too far. I cannot release this feeling of my accomplishments being minimized. Baby steps, I realize, are supposed to illustrate that it is a long, argus road. I was proud of those steps! Furthermore, I am stupid proud of the fact that I can move my big toe independently of my other toes.There are so many little things that I am beside myself with a sense of accomplishment about, yet the phrase “baby steps” makes everything seem so much smaller than they might be.

Or, am I putting a bigger weight onto things that are not that exciting?

Am I just pissing into the wind? Or, to use another metaphor, making moutains of mole hills?

Anyway, tomorrow is five years that I have been… in this place? I am not quite sure how to put it: I got placed into my first chair in February 2014, but was basically a motionless ball of flesh before that. Still alive, but barely a footnote on most days. I want to take this moment to thank everyone who has been supportive. I also need to thank people who have refused to change anything for me: they make me strive to be better. I will have proper news for you tomorrow, and tomorrow is actually the aniverrsary of me waking up.

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*crying intensifies*

The benefit of having a birthday when I do, is that I can use it as a kind of marker for when I should stop making content and start focusing on the season. Yes: this is my polite way of saying that I will not be making any more posts on this site until the new year.

I will still be putting You’re Not Dead ch. 2 up for December first.

I also promise to write something for Margaret before the new year. She requested an idea for a story that will take some time to research and orchestrate. I will post that in the new year (probably February) and it will be amazing.

I will be updating November twelfth (tomorrow), twentieth and December 25th. I will return January ninth with a recap of the past year. I have ideas for an album review, as well as I need to finish that short story that I was prompted for by Martha. I hope I can make that dream come to reality. I really like what I have in mind.

I love you.

Also, do not forget to take a moment of silence for the fallen soldiers of World War 1 & 2 today. I cannot bring myself to care about most events, but I always make sure to do at least that much.

Writing Update and Patreon News

I know: I dropped so many balls that saying that analogy now has become reminiscent of a gay porno. I apologize, and I hope I am going to make everything better in the next few months!

So as you noticed, the ansP that was published on the first was the first chapter of my book, You’re Not Dead. It was reworked, and I put probably ten or more hours into reworking and rewriting a good portion of it. I am going to be giving the rest of the book the same level of TLC over the next few weeks. The Patreons who pay more than $3 until it is ready will receive the whole work in its redone splendour. The old version is still available for E-Readers, but is not in print any longer. It would have cost me way too much money to just repress, and that does not include re-editing and re-working everything to make it up to the standards seen as decent enough for publishers.

Onto ansP news: I will be publishing chapter two of You’re Not Dead, half because I am too burnt out to write something new right now, half because I am working on something that is going to take me a very long time to get to a point I will be happy with it.

THAT BRINGS ME TO MY SEEMINGLY LAZY PATREON UPDATE!

Martha donated near the end of October. When I asked her whether she would rather a bio on how we know each other or a story about dragons (because her and I don’t have a huge history to go into), she gave me outlines for a fiction she wants in her name.

Initially, I found this task daunting. I was intimidated as to write something for anyone but me, let alone for her. I respect and admire her greatly, and I want to make the ensuring story the best it can be.

Now, that sounds like I am making excuses for not doing things, but really I am putting more time to make sure everything is right. I am going to make her story the next ansP after You’re Not Dead ch.2 comes out in December.

My good flying nun, I am excited.

ANYWAY: Check out the Patreon. Check out the stories I have so far. Let me know of what you think of the new You’re Not Dead rework!

I am exploding

I need to take next month off from ansP, Not because I don’t have anything, but because I want it to be good.

I have written so many different ideas, but I am not happy with any of them right now. I need the month to tweak and skew to make everything perfect. I will make sure that December will have a release,

So, yes: the title is a mild hyperbole. It perfectly describes how I am mentally feeling right now. Too many ideas, no follow through.

With all of that said, people backing me on Patreon for enough for early releases will be sent the rewrite of You’re Not Dead in the next month in absence of a release next month. I rewrote several pages and added some, as well. I feel like I released it too quickly and need to work on it more. As it stands, I am rewriting what I can in haste, and if I get enough interest, I will do an updated release in the next year. After that, I am going to never touch that book again. I am done beating that dead horse, but I need to fix some before I can let myself leave it forever.

Seriously: in the first few pages, I walk to the car, put my cup on the counter, walk to the car, grab some music, and walk to the car to drive away. WHY DID NO ONE TELL ME THAT I MADE SUCH A STUPID MISTAKE?!?!?!

Update Time!!!

I usually write blog posts by Monday and have short stories lined up for at least a month. For the first time in a long time, I find myself with a totally empty cue. That is not because I am lazy, but because I find myself with too much in my mind to make a coherent post.

I have written and rewritten this post several times. I refuse to leave you hanging for another week while I sort out my personal life and try to find even a stand of something interesting. Therefore, I am writing this! Is that not super exciting? I know you are having a hard time containing your sounds of enthusiasm and glee.

Know what? I’m just going to put the developments that have come, in rapid succession, over the last week.

  1. I found a new way to step! To make it more exciting: I KNOW THAT IT IS THE RIGHT WAY! I have been walking with my knees locked for the last year. I knew it was wrong, but I could make it KIND OF work for the few steps that I needed to complete when using the washroom or going to bed. DID YOU KNOW THAT THERE IS A BEND IN YOUR KNEE WHEN YOU STAND?!?!?!? I did not. It seemed counter-intuitive to me. Why, when you are trying to stand, would you bend your knee? What is this magic?! Then, my wife mocked me for stepping like a pirate who has seen better days and explained the mechanics of the leg further than anyone has explained them in the past. Please keep in mind: she was a parapoligic for about a year and re=learned how to walk herself, so she is allowed to make fun of me. Well, let’s be frank, anyone can make fun of me so long as I know that it is in jest. I digress, I can now take a couple of more steps. Still no where near not needing the chair for open spaces, but things feel a little more comfortable AND I feel less silly. Oh, and my knees no longer feel like they are going to explode out of my flesh. So, I guess that’s a good thing.
  2. AMAZON REJECTED ME! By that, I mean the thing I was trying out. If I want to be paid by Amazon for advertising for them, I have to collect sales in my first “X” days. A fair number of them. In a reality that surprises NO ONE: I didn’t even get clicks for the links that I had made available to the public. I do understand Amazon’s wish the govern this, seeing as they already have thousands of people advertising for them. This increases the importance of devices like Patreon to make sure that I can keep doing this. I love writing, and I am always trying to find new avenues to do it. So far, the short stories are going well, and people seem to enjoy them. At least, they do to my “face.” WHAT A GREAT SEGUE INTO POINT THREE! segue is a stupid word.
  3. Story three is taking a lot longer than I wanted it to. I wanted to write something completely original. Like I mentioned in a recent post, I want to dissect and rewrite an old story idea I had originally come up with over ten years ago. In trying to do that, I have come up with literally HUNDREDS of premisses and intro paragraphs. All of which I get so far, then they fall apart. I have written most of them down in a document so I have them in case I need them later, but I am feeling the heat as I want to have the Patreon supporters their copy in just over a week from today.

So, yeah. See how not one of these points are longer than a few lines? Each would make a good blog entry if I could expand it further than just a few lines. I prefir to keep things at more than just a thought or two, though I do realize how just one thought would make things easier to follow.

DAMN MY MIND. BACK TO THE GRIND.

heh… that rhymed.
And so did that…

I Despise Steps.

I have been putting a lot of thought into what exactly helped me become (somewhat) adapt at using my chair. I still vividly remember the first few solo voyages being one of the most terrifying experiences in my life. The feeling of a complete loss of control is not a feeling you forget easily.

I hate to be that guy, but using a chair is definitely just that 2-syllable word that has fucked up many across generations: PRACTICE. I went from using an electric chair to a manual one, and that transition was, for lack of a huge backstory, easy. The power one obviously used less effort and was great when I was quadriplegic, but the manual chair is just so… so… Well, the power chair weighed 175KG and my current chair, while it does not fold, weighs 25. I guess the word I was trying to avoid is CONVENIENT. That word paints such a distorted image, so please allow me a moment to explain.

A power chair is great if you need it. If you have no use of your upper body, or are primarily on your own, they make navigating the world effortless. Learning from a power wheelchair was also handy, for me, anyway, because it allowed my body to get used to a different type of movement.

A wheelchair is very different to a car. A car you know that you are moving, but if it was not for the windows, your moving at such a high pace that everything seems gradual. Almost as if it is motion you are meant to be going at. The driver is (hopefully) always in control and, yes it would be a bad idea, you can bail out whenever you feel like it. Riding a bike is similar to a car from the standpoint that it is intentional, yet chosen.

A better comparison for a chair is a skateboard. You can control the movement, speed, and trajectory. However, it is a lot of fuckin’ work, things can mess with the flow you have going very easily.

Take going down that hill in your hometown: smooth in a car or on a bike, but it would not be great if you were on a skate or longboard. If you hit the crack the wrong way, you hit the ground.

Okay… that may have been too extreme of an example. It does work, in a strange way. The attraction to a skate/longboard is the perceived control coupled with immense speed. It does not change the fact that one mistake ends the fun very quickly and causes immense amounts of pain.

The hardest thing to let go of is something that I struggle with to this day. The ability to let go of all control and let someone else move the chair. As mentioned, my Wife and I recently went to Canada’s Wonderland. That place is huge. She had to push me a total of three times, and she had to talk me down from protesting through beads of sweat and clouds of dust a total of ten times: more than she did push.

Now, to make it clear: I am not a man full of pride and arrogance. There is just something innately dehumanizing about the practice of pushing someone who does not need it, and to accept that you need it is similar to admitting defeat.

I have heard people complaining about walking with someone in a chair that it is slow, but one has to remember that for every step you take, I take two. I may not be walking, but I am pushing with both arms. Really, that is truly where the electric wheelchair is fantastic: going out and about. There are also power assist wheels that just give a small boost to the user to make everything easier, but those are bloody expensive.

While doing the limited research I had to do for this piece, I came across the video. Cheesy at times, but very fascinating!

Do you have tips or tricks for using a chair? Please, pass them along! Leave a note in the comments!

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ansP News

I have the next two months worth of stories written. The Patreon’s who have set up payment of $3 a month get a PDF copy as of yesterday. Check your e-mail. If you have not received your copy and you were supposed to, let me know

******

No Amazon stuff this week. Instead, check out this live stream of really chill beats I found.

I guess I should talk about…

…that thing I did over a week ago. I write these a little bit more than a week ahead usually, so news is delayed.

I should just not time stamp all together.

ANYWAY! Tash and I went to Canada’s Wonderland on August 15th! It was hot, it was a long day, and much was discovered. Mostly, eight hours in the sun without sunscreen is a bad idea: who knew?!

Once we got in the gate (which was a bit longer than anticipated thanks to Tash’s work) we got a map and a coffee and started to sort out the plan for the day. We sat under a tree and our faces dropped when we realized that I needed a special pass that I was unaware of at the time. We knew that there would be some awkward bullshit around me being in a chair and whatnot, but we had to come to that discovery on our own. By this point, we had talked to five or six staff who did not even let on that we needed to go to customer service for a piece of paper.

We did what we needed to. The customer service desk was also the hub for missing children as well as general complaints, so we were number three in line, give or take.

FORTY FIVE FUCKING MINUETS LATER and we finally got in the building for the five minuet thing. I hate people.

Anyway, the first hour passed, and we were on our way. Where? Dragon Fire, of course. We figured that it would be a good introduction for the process around everything to do with the chair.

…and the verdict..?

It was all good. A bit strange: wheelchair users were taken up through the exit so their chair was on the proper side to leave the ride at the end. We got to avoid waiting the queue, but that does not mean that we got to skip the line all together. They would base our load time on the estimated wait time for the line. We might be one circuit faster, but we still waited. At times, we would be behind the gate for thirty minuets. It was entertaining usually to see all the workings of the employees as they scrambled to make sure everything and everyone was safe.

There was only one time that was awkward. The ride we were waiting for broke literally the time before we were to be let on. I mean, shit happens, but it was a bit disheartening.

The bitch of the trip was how uneven the paths were. I pulled the muscle in my shoulder trying to keep myself moving in the desired direction, and Tash almost had to bail on a couple of rides from being exhausted pushing my chair up the ramps.

FIRST WORLD PROBLEMS!

The main point that I wanted to say is that, minus sun burns and sore muscles, being in a wheelchair was not a deterrent for going to Wonderland. If you go, just expect a fuck tonne of work getting from point A to B.

INTERESTING REMINDER!

Almighty Human by Hannah Jordan gets released soon. I hope you like it as much as I do!

I am taking submissions for the following months. Please, e-mail me at jay.garden.1188(at)gmail.com for more into!

…and again: I have to thank my Patreon supporters for making it financially viable to release these every month! Next goal is to make sure I can pay someone to do art for each release, since I cannot do visual art in any capacity.