You don’t need to see.

Okay, this sounds like a no-brainer to me, but maybe I’m biased.

If I you don’t see something, it does not mean that it did not happen. We cannot see electricity powering a device, we cannot see water moving through pipes, and we do not see our body metabolising energy. All of these things happen in the background and we do not question their existence.

With all of these things in mind: if someone says they did their recommended exercise for the day, BELIEVE THEM.

I have been, for months, dealing with people in my life not believing me when I say that I did ‘x’. I am just going to put ‘x’ because there are many different things that have been brought to question.

No, there is not always physical proof that ‘x’ happened, but it did. My promise should be enough. Especially when it involves a thing that only benefits me.

I get it: people have an interest in me walking again. People have this idealised fantasy where everything is the same as it was seven years ago. Well; news flash! Even if I walked TOMORROW I might never be able to get my license back. Even if I walked TOMORROW I could be turned away from my old job. In that situation, I would come out much further behind than where I am now.

Now, let’s play positive-guy for this paragraph. Assuming that I did my exercises proper and everything went the way half the medical community says that it should, I am still six weeks off ON THE SHORT END of being able to kind of walk. Assuming my medication continues to work as predicted and my body does not create some sort of immunity, I could avoid seizures wrecking my day, but they are to be a constant in my life.

I didn’t write this as a pity-party for myself. I wrote this on behalf of everyone who feels pressured to do something they are doing already and having no one believe them. I am writing this for everyone that feels overburdened by people who have this strange vested interest in their health, even if it really doesn’t affect them. I am writing this for every person who has been told there is a 5% chance of recovery.

DO IT FOR YOU. NOT FOR THEM.

And for “them”: fuck off. We are doing our best, even if you don’t believe us.

Seizures & Why I Get Them

What happens when I get a seizure? Can I always identify when it will happen and what happens?

Yes and no. There are a few things that happens physically that I notice, but I have become aware to them instead of them intruding heavily in my life.

I get sleepy. That sounds stupid (I am well aware) but it happens randomly and suddenly. I am still a step or two away from finding out why it happens, but I suspect  hypoglycaemia or something in that same vein. The reason I do think that is it only happens when I have not eaten properly for a few hours.

Everything on that point sounds really silly to me when I type it out, but I can assure you: it is a hassle. Think of how often you go an extra hour not eating because you have to finish something or you have company. I pass out.

What am I doing to mitigate the issue? I drink a pop/soda when I start to feel a bit strange. That is usually enough to hold me over until meal time. Otherwise, I am just eating as much as I can, and exercising.

I have only hurt myself once when I fall over. The other night, I must have gone face first into a desk. I came to with a black eye and a bruise/scrape combination on my arm. Otherwise, there has been no effect outside of loosing some time and being horribly disorientated when I wake up.

I have done a little bit of research into what causes seizures. The case that relates most to me is massive cranial trauma. Since the encephalitis was literally my brain crushing itself against my skull, I am going to assume that is the link to why I have seizures. I feel I am allowed to make assumptions because the specialist I saw actually said ‘yeah… we don’t know why you pass out’ (please note that is paraphrased, not a direct quote).

Anywho, I just thought I would fill everyone in with what I know.

SIDE NOTE: I have my next book mostly done. If you would like to read the rough draft, let me know either in the comments below or on my FaceBook.