At the risk of being hated…

I am writing this paragraph to reiterate that I am, in no capacity, a medical professional. What I wrote below is in the same vein as opinion, and points are speculation at worst, and loose unsubstantiated conversation bits at best. That goes for any medical opinions I have given on this site. There have been many questions regarding my credentials and sources over the years, and I would just like to remind you that I don’t have either.

I am writing this even though there is a great risk of me being labeled more harshly than is necessary. As much as I am going to make this statement in a blunt fashion, the intent is not to offend, but to squash assumptions and set records straight.

I got the meningitis vaccine. If you did not, and got the sickness (and wear that fact as pride), I have little sympathy for you.

I am not saying that I am pro-vaccine. I am far from an anti-vaccer. For instance, I have every shot, but I refuse to get the flu vaccine. I don’t trust it, I get the importance of what they are trying to do, but I cannot see it as necessary right now. Maybe in a few years I will have my mind changed, but for the time being, that is my stance. 

With the meningitis vaccine, I know my position is precarious and seems backwards. It is steeped in half research and questions that no one asked. I realize that I am far from a professional, but hear me out.

Apparently, the vaccine that is given in high schools across Canada is specifically against bacterial menengitis. The assumption is that I was stricken with a viral strain, and the vaccine will not work. Therefore, my attempts to pre-emptively deal with things were thwarted by unfortunate chance. 

What is my point? I just want, maybe even need, to express the importance of mitigating damages. I tried, and was unsuccessful. When I hear someone complaining even though they never tried in the first place, I get very frustrated.

I should not use this platform as a soap box.

I felt like I had to get this out. If you took that risk and didn’t get that shot, that’s okay. I still love you, and I wish you the best of health. If something does go wrong, reacting with surprise is not the proper way to go about things.

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Ableism : Social v. Institutional

I got about 200 words deep into this topic, when I decided to look back at my catalogue to see if I had done something like this before. I had. I feel silly.

One thing that I did not talk about (because I was not faced with it yet) are the fucking cabs in this city.

I, to those who did not realize, used to live in Hamilton. Now, I live in Burlington. You can actually see Hamilton downtown from my living room window if you can look past all the buildings.

It’s behind Ikea.

What I did not and could never expect was how different the cabs were. Regardless of time, Hamilton was there to make sure you had a wheelchair taxi at your disposal. Four AM or four PM, you were covered.

Burlington, on the other hand, almost pretends that people in wheelchairs do not exist after dark. Accessible cabs do not exist after eleven, forcing you just to give up and go to bed.

Stores have wheelchair ramps and doors, but it feels like it is out of obligation. Rooms are never designed to fit a chair, main door theshholds are always too large, and everything is horrible.

But, enough of me wincing on about that. What about political?

There are laws in place to protect people who find themselves, whether acute or not, in a wheelchair. Are they enforced? Fuck no. There are government buildings where automatic doors open the wrong way, there are a plethora of ramps that are to steep, and God Forbid you have multiple disabilities: the job market cannot handle it.

For example, I am paraplegic and epileptic. I have searched for a job. I wold love a job. My body is too unreliable. No, employers cannot discriminate about your disability here. They can find other avenues, however. They can stress the fact that you cannot leave your post until it is time, health condition be damned. They can point out pitfalls in layout and pose the question as “… but that will not be an issue, right?” The point is taken.

I fully admit that I have a limited scope in dealing with this kind of bull. Between knowing that I am the only disabled person in my building and knowing that, no matter how much I really want to, I cannot go back to my old job, my ego is fractured into one-thousand pieces.

….and do not get started on government assistance. I have had a right bitch of a time getting medical coverage for the two medications I need and STILL do not have any coverage.

What really hurts me, and I double checked that other article, is people who knew me before still assuming I could (at least half) do what I could before.

Or people who never knew me before assuming that I am using my disabilities as a kind of crutch.

Oh, there would be a special place in the afterlife for people like that, if one exists.

NOW THAT I HAVE GOTTEN THAT OFF MY CHEST!

anewsin Publishing is having its first release on the first of July. I have updated the Patreon to include an awesome perk that if you donate just $3 a month, you get the upcoming story early! I hope you like it!

what have i done?

I have rewritten You’re Not Dead for the re-issue due this year. Friessen Press has this thing where you have to pay for re-issue for hard release every two years. I understand it, but, fuck me, is it worth it?

I’m going to go with a ‘yes’ on that question. Like I mentioned, I have rewritten much of it. Most of which was editing grammar mistakes missed by the editor. Some of it was fixing continuity. It was fucking hard having to reread bits and relive other bits. Especially because I am adding an afterwards.

To be clear, my epilepsy has been since day one in the hospital. To ignore it is to ignore part of what the story is trying to tell. The only problem is that it fucks with the timeline by several years. My initial plan was to just highlight what I went through in the ten months, but to truly tell the story I am trying to tell, I have to push everything to nearly 3 years later. I am worried that it is going to get off topic. My worst fear is that it will come off as ramble-y. Check that: more ramble-y that it already was.

Other interesting note: I am sorry to anyone who got a copy in the state that it was in. I have found so many bloody stupid mistakes that I cannot even blame on epilepsy. Mistakes like using the wrong ‘their’ or talking about hw the Hero walks to the car, opens the door, then finishes his coffee and makes his way to the car.

Yes, I know it was my first attempt at writing. I know that I have no clue what I am doing. Yet, I cannot shake the feeling that I am a COMPLETE FUCKING MORON at times.

ON A FUN SIDE-NOTE THAT FINISHING OFF CALLING MYSELF AN ILLITERATE MORON!

I started planning my second book. I had a talk with my publicist. I mentioned how I am terrible at writing one long narrative and find it much easier and I have more fun writing short 1000 word stories. He thought that I should consider releasing a book of short stories for my next project. After finding old story prompts that I wrote back in high school, I can say that I am actually excited to start a venture into this plan!

I have updated my Patreon so a small monthly donation of $5 will guarantee that every two months you will receive a PDF containing whatever I am working on next. Please, consider giving to that. It will help me feed the animals, pay my rent, and make sure this blog stays open. I would love to thank the donators I have had so far. Without them, you would not be able to see this update.

This weeks recommended listening is Chon. Lovely four-piece that combines metal and jazz. I am probably going to be yelled at for putting it that way, but I do not really know how else to describe it. Musicians will cry, everyone else will be swooned by the beautiful sounds.

update; most . of what I talk about above is no longer relevant. More news in the coming weeks

…you will die.

I posed a question to my Facebook the other day: if you had to hear one song and then you died, what would it be?

I never really put any further explanation, nor have I voiced my personal choice. I was just curious how many replies I would get, and what kind of songs people would post.

I found the results of the pole confusing. Granted, I never made it explicit what the circumstances of your death would be. Maybe that is why I found the answers so confounding.

The rules are that once the song ends, you will die immediately. What I had in mind was a gunshot or massive heart attack. This would ensure that there would be no way to recover or survive, and the final song that played would follow you into the void.

I had some interesting replies. One fellow thought that he would break my game and just go with the Song that Doesn’t End (you’re welcome for that link) and from that point he would live forever. With the parameters I placed on the question, I fully understand why he went this way. To him, my official reply is: well played, sir. Well played. Enjoy that song following you around for the remainder of all time.

The other big reply that I got was Queen’s Bohemian Rhapsody. Though, that song is amazing, it is so long. You would be dwelling on the fact that you are going to die for the entire 5:55 that the song goes on for. I do not know about you, but for the almost six minuets it is playing, I would not be able to enjoy it. I would just be cringing and counting until my demise.

That is why my choice would be Mother Night Revisited by Premonitions of War. The song is stupid short (1:21) and it is busy, loud, and distracting. The cacophony it creates would drown out my thoughts of my impending demise and it ends abruptly, not giving me any time to dwell on the fact that it is ending.

Maybe I am just biased, but I want to just cease living, not contemplate my entire life throughout my favourite song.

AMENDMENT:

Well, amendment is a strong word for the situation. More like another idea, or concept, that I would like to share because it is so cool!

The album Transatlanticism by Death Cab for Cutie is one of my favourites of all time. It is dark, cynical, honest, and beautiful. One thing that it does (in the most sneaky way) is open with a machine sound. The album plays and that machine sound seems to stop. Where it gets really cool is that the sound does not actually stop, or even change volume. The sound hovers in the back. It is not fully noticeable again until the very last song where the guitar and vocals clear for a moment to revel that it has been there the entire time. Until then, one may not notice just how invasive the sound has been through the entire album.

Then: it stops.

The album ends, therefore the sound ends. Actually, if you wish to get petty, the sound ends one second before the album does. The silence is deafening. At that moment, you are left to reminisce on every word that was sang up until that point.

I am pretty sure that it was not intentional, but it beautifully demonstrates my view on death. Everything ends abruptly and there is nothing.

Fuck, that sounds bleak.

ANYWAY: I am curious. Please, let me know in the comments what song you would like to die to immediately preceding. Do you have a reason for the choice? What is your take on my choice?

Linda

Linda and I have a very uninteresting history. She is the mother of a friend of mine, and she is/was a regular at the music store I managed.

Being a nurse, she took an interest in everything I have gone through. One would think that once I left hospital, however, her interest would wain. That was far from the case, however. She has stayed in my metaphorical corner. Her support has been fantastic. She has shown my book to a few of her co-workers (which I appreciate) and understands my plights from both an educated and friend level.

There really was no point to me writing this other than I was feeling very particularly thankful of her existence when I wrote this. I will not link to her profiles or give her last name (because that is creepy and weird to do without permission) but I hope that everyone has a Linda-type in their life. We all need someone to just be in our corner when we need them.

An interesting development…

I was told three years ago that I got Viral Meningoencephalitis. The very confusing part to me was the meningitis part: I was vaccinated by meningitis back in high school.

The stupid thing I did was forget the “Viral” part.

Vaccines don’t do anything to viruses. Though, in theory, my system was better equipped for the ensuing onslaught, there was no protecting me from a virus. This also means that what I was afflicted with was not lifestyle but exposure.

I am well aware how silly all this must sound to some of you. I can almost hear the chorus of “no shit..” coming from the masses. This was something never properly explained to me and, therefore, I was very confused.

So, what does this mean?

I HAVE NO IDEA!

It does, however, give me a bit of peace, in a strange way.

UNRELATED CAT POST

Meet Willow

~June :: The Worst Month

I don’t like generalizing whole months as one thing. No month is inherently bad or good. This June, however, was especially amazing in how it kick my ass, and it is not over yet.

So, as I mentioned in a previous post, I had a seizure on the first and on the fourteenth. I scarred the shit out of my fiancée, and spent far too long in hospital. Never a fan of hospital stays, medication, or loosing control, I lost all independence for a total of t=24 hours collectively. Normally, this is where I say “one good thing that came about is…” but nothing good came of the event. I am fine, if you were concerned, but very embarrassed. I am actually very reluctant to even bring it up, but I started this blog with transparency in regards to my health. Therefore, seizure notice!

On the evening of the 18th, my cat (Hank) jumped from my balcony and fell seven floors. Wee spent over 12 hours trying to find him before we saw a note in the foyer talking about a small, orange body that was disposed that morning. That was devastating, as can be assured. There are a million excuses. None of them, however, bring my best friend back. I loved him. I miss him. He will forever be missed.

On a less depressing and more annoying part, I am about to celebrate one year of You’re Not Dead being released. I have only moved 95 copies (at time of writing) and I am not sure if I will sell any more this year. Thank you to anyone who bought/read it. I am just disappointed that I did not reach my goal of 100 copies sold in one year.

Eh. First world problems.