I try my hand at telling you not to love what you love for the sake of art.
It turns out that epilepsy is linked to depression. I thought I was just feeling down because, even after seven years of dealing with it, I never quite got okay with being in the wheelchair. My mind also played with the idea that it is because I’m not playing on stage anymore: maybe it’s a kind of withdrawal?
No. As a friend of mine put it, “all this brain stuff effects depression”. See, she also suffers from epilepsy, and has for a very long time I asked her, flat out, if this is “normal” because I knew that, of anyone, she would know.
Actually, I told her my findings and asked her if she felt down and if she could link it to her depression. Well, I asked her all of that in a less rambly way.
I am not using this as a crutch.
I am not putting all past and future actions on this one fact.
I AM looking into it to explain some things I have said to myself. To come up with some sort of reason for things said that I normally would never dream of. This helps me understand and rationalize some of my less-desirable traits that have come to my attention as of late. Not excuse reactions away, but explain why I might say or do something completely out of character.
I feel like I have to express this the most public way I have available to me.
UNFORTUNATELY FOR YOU: that is a blog post.
My reading was from this site, and it really does explain epilepsy and depression in an easy-to-read way.
I have the strangest bit of writer’s block.
Well, to call it “writer’s block” is a bit of a misnomer. It is more of a crippling wall that I find myself behind.
Okay, let me backup a bit:
I am a fan of writing parts out of order. If I find myself stuck at an important part, I leave it alone for a bit, and move forward. I then go back to the part that I find myself stuck behind and hope that what I have done moving forward has either answered what I am stuck on, or given me an out.
The story I am writing right now involves a bit of physics that does not exist. It involves movement faster than light, which is empirically impossible (as of the writing of this journal) and shows no possibility of being conquered. So, in usual fashion, I started writing further into the story to fill out other ideas.
I wrote over 10,000 words when I hit another wall showing me that I need to, at least, fudge the concept into some kind of in-universe reality. The part that makes it so hard is that I am trying to keep the world that I have built at least KIND OF realistic. It involves science that does not exist: it involves science that we want to exist. This means that I have a lot of information that would not work, and what makes it MORE frustrating is that if I try to use the thing that doesn’t work, people will quickly debunk it and the story becomes tainted.
I know that I am putting too much faith into the reading community. I should just write something and stop worrying if it makes sense. I should just ‘yadda yadda’ the movement thing when it comes up in the future. I should have written something easier.
I is not that brite an’ is no gud at riting.
Unfortunately for me, and my back account, I am an arrogant fucker who wants to create something that warrants respect. I am sick of being the “guy who helps do stuff” and I want to become someone worth a damn.
Speaking of being worth a damn, did you want to be in the thank-you section of the book that I just spent the top portion of this post bitching about? Donate as little as a dollar to my Patreon a month, and that will happen! It also helps me keep this blog going for another year. I mean, it will anyway: the monetary gain just makes it worth it.
I hope this is a good idea: I have this thought that talking about mental stress, in any capacity, is a good thing. If I am wrong, I will pull this down.
My thought process is that more conversation about anyone with mental issues will help everyone who deals with them on some level.
I have, for a very long time, dealt with my own mortality. I actually feel guilt for being alive.
Now, that does not imply that I am depressed. I actually feel this way whether I am having a good day or not. I am constantly thinking about how I am squandering aspect of life, even when I am doing everything right. I have released more albums in a period of 10 years than most people will in their entire lives. I have written a book. I do a PodCast, and I have produced a number of songs. I am married to an amazing woman. I have three beautiful dogs, and a cat that is amazing. Even this blog could be seen as an accomplishment, though even on paper, I don’t see it as anything special.
I feel constantly hounded by the fact that I am heavily in debt. Things I do don’t get the attention that I think they should. A large part of that is my examples are ludacris to live up to. I have constant reminders from other YouTube personalities, musicians, and writers who have great success and reach limits unheard of by history.
The biggest component is my health status. I get daily reminders that I am not walking. A close relationship tells me often how my seizures are self inflicted, and I believe it even though I know that they are not.
I am trying, but I feel as though that I have done this all to myself. I then start to feel horrible because there are people (friends and otherwise) who have died before they could do anything eternal. I feel as though the system wasting it’s time on me is for not. I am literally living my life because other people want me to for them.
That is something never talked about: how we don’t get reprise from life. Even on a day off, we have to make sure that we do X and Y for ourselves so we can get back to doing things to “better” humanity. It does not help that, because I am over 30 years old, I have signed a collection of confidentiality agreements to prevent my doctors explaining certain things to family and friends.
Couple this exhaustion from life with my disdain for existence, and I am having a hard time. I AM NOT DEPRESSED, but I am feeling trapped and pulled thin. I make morbid jokes because I find them hilarious. I talk about killing myself, NOT AS A CRY FOR HELP, as a way to express emotions at that time and date.
I tell everyone that I love them, because I genuinely do. I am going to start signing off every PodCast with “I love you” because I don’t hear that being uttered enough.
I know I said that I am taking a break, but I really needed to get that out.
I love you.
The strangest thing has happened over and over again.
I will post something: a picture, a status, a video. Someone will post a comment asking if I am able to do X now, or if I am “better”, or something to that effect, and imediatly people start telling me that I’m okay and shouldn’t be too down on myself.
I am NOT cursing those people out. I am not shaming them for trying to get ahead of negative thoughts or actions. I am NOT ungreatfull for the kind words that are never rude.
I am mildly worried that people think that I am having a harder time than I really am.
I want to make it as clear as I can: I am okay. I am doing things to improve my life day by day, but I am very aware of what I will never be able to do again. I sustained brain damage thanks to the surgeries to save my life, so I will probably never be able to drive again. As far as walking goes, I am making strides in other parts of my body which prove to me that I have not strengthened the muscles I need to walk yet. Muscles like the ones at the sides of my core, for instance. I did some bending the other day, and noticed the struggles I was having to bring my torso back to centre. I have been doing not–sit-ups since, and have noticed a tonne of new advancements in other areas.
My current mental slippage has little to do with my physical being. A Millenial struggling with the economy, politics, and disability in society? Weird! Never would have figured myself someone with a cause, but here we are. Thirty-almost-two and still figuring out shit.
I have my next PodCast half-scripted, and I hope to record it soon. I also made a huge mistake in my next book, but have since found a way to use it to my advantage (I think…). I hope to have that part all settled in the next month or two. In the meantime, I will just keep myself sane by listening to old favourite songs, watching stupid videos online, and writing my thoughts out to the aether.
So that break was not as long or as dire as I thought it was going to be. I moved, yet again, and did not have my computer monitor for a very long time. My dad wanted me to use a TV as a monitor, but I explained to him that the brain damage I have is on my optic nerve and I cannot focus on a screen that big. He understood; and after almost a week of searching through boxes, as well as literally building parts of the house, we found it! Now I can regale you with tales from the parts of Ontario that people don’t even drive through!
I have been holding back a little bit: I still have to finalize some bits for health care, and I alluded to the fact that I have not written anything for the last week. The health care stuff I am in a bit of a holding pattern until tomorrow (the 20th of October) because I have a meeting with a social worker. I want to see if I can figure out some personal stuff before I start sweating the little things I.E. my health. I am greatly excited to see if I can do some sort of non-profit stuff out this way, as I might be the only 30 year old in a wheelchair who hasn’t lost a limb. My unease in saying that dictates how hidden that issue is, and I am very excited to explore and assist where I can.
As far as music and I go, I think we part ways for now. At least until I get a more reliable and faster internet connection. The fact that my upload speed is under 3mb/s is mildly embarrassing. Yes, download speeds are a bit better, but I have scripts and recorded dialogue and audio-fun that I want to share with the world! At least we have something here.
I just moved again. I cannot find my monitor.
Sure: I could use my TV, but focusing on text is too difficult on a screen that big.
(My eyes are annoying)
I’m writing this short blog post from my phone, which is not good for my usual ramblings. Links on this though possible, are annoying to implement.
My humble ask is that you come back when I have everything set to continue, again. I miss writing, in every capacity.
A big plus for the break is that I figured out a plot issue with my book (in regards of how to fix it). Reminder that if you want your name in the Thank You section, donate to my Patreon. The help would be much appreciated!
I was on fire the other day.
I got writing my next book, and had this strike of inspiration! I have been sitting around 5000 words for the last couple of months: I knew where I wanted to go, just not how to get there. I had figured it out the other day, though. My Glob, I had figured it out!
I had a very sterile ending, that works brilliantly. Jay sandard, which translates to “everything you just read was so much worse for the character than you originally believed”. I had this one event that I wanted to happen. I showed it to the beautiful Patrick, and he pointed out how there was no compassion on the side of the reader. Basically, I had this avatar get shot and no one should care.
Initially, I was a little indignant. I have always, and probably will always, believe a story should be more a snapshot of an event rather than a retrace of past events that have little bearing on said event. I got thinking about Pat’s comment in this context, though. I started to realize that he was more correct than I wanted.
After penciling ideas out for a month, I finally had an idea of where I wanted to go. So, on Monday, I put down 2000 or so words. Tuesday, I heard the sirens call and wrote another 1000ish words. Wednesday, I was on fire and wrote nearly 5000 words. Yesterday, being Thursday, October 1st, I read over the fruits of my labour. That day was the first day that I didn’t have new ideas, and I was happy to just reflect.
Imagine my horror when I read the same chapter (with variations, minor but there were some) three times. I spent the next few hours stunned into silence. I had not started my music before I started reading, and I was between YouTube videos. There I was, staring at the horrible mistake I had made.
I was floored. I was upset. Hours upon hours of work would have to be destroyed. They were too similar and time sensitive to use again in the narrative, which means I couldn’t even recycle them for “the next day” or something like that. They were useless.
IF ONLY MY STORY WAS ABOUT THE DELICATE NATURE OF TIME AND SUDJESTION!
Oh wait, it is!
Without giving too much away, I am going to try to make them work as recursion as a hint for the reader that everything is wrong. I started a plot-progression tree to try to keep track. It’s already intimidatingly large.
If this works the way I think it might, this will be amazing.
Now to drink all the coffee ever in celebration!
Oh: I’m moving on Wednesday. There may be a little hiccup in updates, and if you want to come by for a visit, do so now. I’m moving 5 hours away and though everyone is welcome to come over to visit, it will be a bit far.
Hey. I got a new chair Thursday. I’m sorry I didn’t tell you. I have been busy.
I’m working on a new PodCast surrounding the concept of artist hating their own work. I got feedback on my FaceBook. I have a mild script this time, so I keep my thoughts in a somewhat organized fashion. I feel pretty optimistic about this one. Mind you, I thought that about the last one, and I have only had eight views on YouTube at the time of writing this. I will not say that it is because of poor production, not enough responses to blame everything on that.
I have been writing a pretty torrent, as of late. I am expanding Martha. to be a full story, and the couple of people I have had read it over really enjoy what I’m doing with the plot! To make it even better, I am having such fun delving into that world. I have been writing the tale since May, so I am not happy with the 5438 words that so far. I had planned on doing 1000 words per month, so I am close to my target. I want to start shopping it out after I finish. I don’t plan on having someone bite; but if I continue this direction, I think it will have a better chance than some. I really like it, and I hope you do to!
My strange quiet for the past month? We’re moving again. Well, for my wife and I it’s again. For my parents, it’s the first time in 25 years. The cacophony surrounding everything keeps my mind very busy, and I am going to attatch myself to that premise as to why I have not been around as much.
OH! Here’s the new chair!
Maybe I just missed it in my research, but I want to start a section of municiple government that looks into local bylaws regarding disability.
What would that cover? Things like industry complying with laws that govern accessibility. Resource management for individules. Set up and manage wheelchair transportation.
Yes: I know this would govern a small population in any city.
Yes: I realize that a good portion of what I am proposing should be set up by private companies and it DOESN’T exist right now because the demand is so low.
The idea that this branch doesn’t even exist*, again, upsets me very much. I am more than willing to take up the mantle if no one else is. In the case where it does exist: please give me the information for me to, at least, check in: to see if there is anything I can do. I have mentioned in this blog before, but I want to be a contact for people. I have little to offer, in the way of legal connections. Sometimes, all you need is a helping hand. I feel as if the connections I DO have are very solid, and a few are mildly ignored.
If I had unlimited money, and political power, I would create accessible housing options. As it stands, there is very little in this region. Actually, there seems to be very little in most, if not all, regions. My wife and I have been looking and, unless we want to go back into an apartment (which we don’t), there is always at least 2 reasons not to keep looking. It’s disheartening. It’s depressing.
I want to take action assuming that I will not be in the chair forever. This has become more of a passion thing, for me, and if I see no return (but break even) I’ll still feel like I had a minor win.